Facebook

Many parents share valuable information via social media

Latest Publications:

Useful links

KdVS support group
Supporting Families with Koolen-de Vries Syndrome
Chromo 17 Europe

Social media
Facebook:https://www.facebook.com/supportingkdvs

Sites/organizations providing information on KdVS

Orphanet
Unique
GeneReviews
Genetic Home Reference
OMIM
POSSUM

Databases for rare chromosome aberrations
DECIPHER  
ECARUCA   

Radboud university medical center
Department of Human Genetics